Resources: Organ Transplant & Support

 

Online Forums

  • Transplant Buddies provides information about the transplant process, resources covering drugs and side effects, and daily discussions about living life as a transplant patient. The site also includes members’ photos and life stories covering experiences of both transplant recipients and donors.
  • Transplant Friends is the sister site to Transplant Buddies which was created Feb. 12th 2000. We launched our first forum in Dec of 99 “The Transplant Sharing Exchange” by Boardhost.com and saw there was an invaluable purpose for communication within the transplant community.  We added several other message forums and then added the domain transplantbuddies.com (2/12/2000) to serve as the main destination place for all the forums.
  • Daily Strength: Organ Transplant Support Group was created by internet veterans with more than 20 years of experience conceiving, building, and running the largest communities on the web, including Yahoo Mail, Yahoo Photos, Yahoo Personals, Yahoo Groups, GeoCities, Facebook, My Yahoo, Yahoo Message Boards and more.
  • MDJunction‘s organ transplants support group is a Social Network that serves as a meeting place for people with health challenges, a comfort zone to help and get help.
  • Heart Beats is an online support and resource group for pre and post heart transplant patients, patients being tested for possible cardiac transplant, as well as the families, caregivers, and friends of those patients. Our discussions include various aspects of heart transplantation as well as organ donation, and are frank and open.

 

Support Services

  • Caring Bridge  provides free websites that connect people experiencing a significant health challenge to family and friends, making each health journey easier.
  • Children’s Organ Transplant Association helps children and young adults who need a life-saving transplant by providing fundraising assistance and family support.  COTA does not charge for its services and does not take a percentage of funds raised.
  •  The AirCare Alliance is a nationwide league of humanitarian flying organizations whose volunteer pilot members are dedicated to community service.  This site will introduce you to us and to all the groups we list whose volunteers perform public benefit flying for heath care, patient transport, disaster relief, educational experiences for youth, environmental support, and other missions of public service.
  • Angel Flight was created by a group of pilots who believe in the benefit of volunteering. We strive to keep all aspects of the organization volunteer. We are a non-profit charitable organization of pilots, volunteers, and friends. We will arrange free air transportation for any legitimate, charitable, medically related need. This service is available to individuals, and health care organizations. We will also arrange transportation of those people who are financially distressed, or who are in a time-critical, non-emergency situation due to their medical condition.
  •  Help Hope Live (formerly NTAF) is the place to fundraise for anyone dealing with the many challenges related to a transplant or catastrophic injury.  We provide the consultation needed to raise funds to bridge the gap between what health insurance will pay and what is actually needed to heal, live and thrive.  We provide the consultation needed to raise funds to bridge the gap between what health insurance will pay and what is actually needed to heal, live and thrive.

 

Organizations / Information

 

Facebook

 

Local Bay Area Support Groups

UCSF

Heart and Lung Transplant Support Group

The group offers peer-based psychsocial support for heart and lung transplant patients. The group varies and may have both pre and post transplant patients in attendance. It is facilitated by two transplant social workers. Periodically, speakers are invited to present on a topic relevant to transplant. Caregivers or family members are welcome to the group.

Meetings: Every fourth Thursday of the month from 1 to 3 p.m. Please call for location.

Contact: Nikki Galin (415) 353-8818

Stanford 

Heart Transplant Patient and Caregiver Support Group

When: Last Monday of every month (excluding holidays)
Time: 1:30pm-3:00pm
Where: Stanford Hospital – Blake Wilbur Building, 900 Blake Wilbur Dr., Stanford, CA 94305, First Floor Conference Room W1084

For more information please contact Cathy Miller, LCSW: 650.723.5581 or Marianne Doyle, MSW: 650.721.2319

Caregiver Solid Organ Transplant Support Group Meeting

When: The 2nd Monday of each month (excluding holidays)
Time: 5:30pm-7:00pm
Where: Stanford Hospital – Cancer Center, 875 Blake Wilbur Drive, Stanford, CA 94305 Room: CC2105

For more information please contact Jenny Kwak, LCSW: 650.498.5831 or Tonia Gregory, MSW: 650.723.4440

Bay Area Transplant Recipients International Organization Support Group

Meetings: Every second Thursday of the month at El Camino Hospital, Mountain View in Meeting Rooms E and F

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s